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ALLIANCE Involvement Network Update

Focus Group on Bed Sores

When: Thursday 17th March, 2pm-3.30pm
Where: The ALLIANCE, Venlaw Building, 349 Bath Street, G2 4AA

One of the roles of Healthcare Improvement Scotland is to set standards of care for patients accessing health and social care services across Scotland. They do this by working with staff, individuals, volunteers, carers and families.

They are currently developing standards to ensure that people who use services for the prevention and management of pressure ulcers have the same high quality of care wherever they live, whoever they are and whatever their personal circumstance.

To do this they are looking for feedback from people who have experience of pressure ulcer care.

They will share information about the draft standards for pressure ulcers that they have developed with their project group and would like to hear your feedback and comments about them. 

Taking part provides an opportunity to influence the way NHS Scotland provides services for the prevention and management of pressure ulcers.

If you would like to take part, please get in touch with Gillian Fergusson by email (gillian.fergusson@alliance-scotland.org.uk) or telephone on 0141 404 0231.

Paid Workshop Opportunity - Understanding Health Research

When: 23rd March - 12.15-2pm
Where: Glasgow

The MRC/CSO Social and Public Health Sciences Unit at Glasgow University are looking to evaluate a new online tool they have created to help people make sense of health research.

They are keen to ensure that the perspective of individuals with long term conditions and carers is represented in this exercise. Professionals and volunteers who support people with LTCs would also be welcome. 

People will be paid £30 for their time and reasonable travel expenses will be covered.

There is a web page with more information here:

http://www.testingtreatments.org/understanding-health-research-help-needed/

If you would be interested in taking part in this, please get in touch with Benjamin by email (benjamin.mcelwee@alliance-scotland.org.uk) or telephone on 0141 404 0231.

Research Opportunity for Individuals: Exercise Prescribing Using a Links Practitioner Model

Researchers at University of Stirling are in the early stages of writing a research proposal exploring the idea of co-locating exercise links practitioners in GP practices and leisure centres to act as a bridge between health and exercise services and would welcome some involvement from individuals.  

Physical activity is important for the prevention and management of disease. Yet, a third of adults in Scotland are failing to meet the government recommended level of physical activity to achieve health benefits. Half of these adults will have an existing medical condition who may be put off from being physically active for fear of making their condition worse, pain, being too tired, or getting hurt. In this particular study, the main focus is on examining the main challenges of implementing and testing this intervention in practice.

If you would be interested in taking part in this research, or want further information, please get in touch with Benjamin by email (benjamin.mcelwee@alliance-scotland.org.uk) or telephone on 0141 404 0231.

Research Opportunity: Children and Young People with Complex Health Care Needs 

Researchers from the University of Surrey would like to invite families with children and young people under 19 years old living with undiagnosed complex health care needs to participate in a research study.

The study is interested in exploring ways in which technology could help support families to stay at home with their children and young people, but families don't need to know about or be using technology to take part in this study. There are two ways families can take part ­- either by participating in an interview or by completing a short survey. 

If you would be interested in taking part in this research, or want further information, please get in touch with Benjamin by email (benjamin.mcelwee@alliance-scotland.org.uk) or telephone on 0141 404 0231.

Have Your Say on the ALLIANCE's Manifesto

The ALLIANCE has launched its manifesto for health and social care in Scotland and we want to hear from you before the upcoming Scottish parliamentary elections.

'2 Million Expert Voices' demands that combating loneliness and social isolation must be a top priority for the new Scottish Parliament and calls for: 

  • More support for people to “self manage” their long term conditions;
  • The creation of a Cabinet position to represent and work on behalf of people with long term conditions, people who are disabled and unpaid carers;
  • A new approach to social security, based on compassion and human rights.

A new website, 4in10.alliance-scotland.org.uk, contains full details of the manifesto and personal testimonies from ALLIANCE members on each of the asks.

Have your say on the ALLIANCE manifesto today and make your voice heard by contacting Andrew Strong by email at andrew.strong@alliance-scotland.org.uk or by telephone on 0141 404 0231.

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Venlaw Building
349 Bath Street
Glasgow
G2 4AA
United Kingdom

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